About Us

Accomplishments

About the Canadian Pain Coalition

The Canadian Pain Coalition (CPC) is THE National Voice of People with Pain. Incorporated in 2004 as a nonprofit organization, the CPC is a partnership of pain consumer groups, individuals, health professionals who care for people in pain and scientists studying better ways to treat pain. CPC promotes sustained improvement in the understanding, prevention, treatment and management of all types of pain in Canada. CPC accomplishes this through pain education, awareness activities and advocacy initiatives. CPC obtained the Senate Declaration of National Pain Awareness Week in 2004. Please visit our website at www.canadianpaincoalition.ca.

Organization

  • Inaugural organizing meeting - 2002
  • Incorporated as a non-profit organization October 29, 2004
  • Volunteer recruitment and engagement 2002 - present
  • Website creation and upgrading www.canadianpaincoalition.ca 2006 - present

Pain Awareness Initiatives

  • Created the Canadian Charter of Pain Patient Rights and Responsibilities 2003
  • National Pain Awareness Week Senate Declaration 2004
    • Speaking at National Pain Awareness Week Events 2004 – present
    • National Pain Awareness Week campaign and poster distribution 2005 - present
    • CPC display booth at National Pain Awareness Week events 2006 - present
  • Public Awareness
    • Freestanding display booth created 2006
    • Co-founded Painexplained the national pain awareness campaign of the Canadian Pain Society,
    • Canadian Pain Coalition and Canadian Pain Foundation 2007
    • Pain Information booths at 31 Loblaws Pharmacies across Canada 2007
    • Display Booth and materials to Pain on the Podium, Neuopathic Pain and Fibromyalgia forums across Canada 2007 - present
    • Pain Information Booths at malls across Canada 2008 – 2009
    • Display Booth 2008
      • Women’s Health Matters Forum and Expo, Toronto
      • Canadian Diabetes Expo, Toronto
      • Corporate Health Fair, Toronto
      • Neuropathic Pain event, Calgary
    • Display Booth National Pain Awareness Week 2009
  • Health Professional Awareness
    • CPC display booth at Canadian Pain Society Conference 2005 – present
    • National Pain Awareness Week poster and information mailings to Canadian pain clinics and hospitals 2007 – present
    • CPC updates in Canadian Pain Society quarterly newsletter 2007 - present
    • National Pain Awareness Week poster mailing to Canadian MDs 2008
    • CPC display booth at Chronic Pain Refresher Course of Canadian Pain Society Education Special
    • Interest Group 2009 - 2010
  • Media
    • Spokespersons about pain issues facing Canadians and personal stories about living with pain to national, regional and local media 2002 - present
    • Media coverage relating to National Pain Awareness Week messages
    • Media coverage relating to Team CPC Pennies for Pain entrance in the Scotiabank Toronto
    • Waterfront Marathon 2009 - present

Education

  • Development and distribution of “Conquering Pain Booklets” 2006 – present
  • Hosting neuropathic pain Healthcasts on www.canadianpaincoalition.ca produced by Patient Ambassador
  • Program 2007- present
  • Quarterly e-newsletter production 2008 – present
  • Public Pain Education Clinics at Dell Pharmacies, Hamilton 2008 - 2009
  • Recorded and hosted chronic pain management Healthcast on CPC website 2008
  • Created the Pain Resource Centre at www.canadianpaincoalition.ca 2009
  • Co-hosted a Public Forum on Neuropathic Pain with Dell Pharmacies, Hamilton 2009
  • Recorded and hosted fibromyalgia and chronic pain Healthcasts on CPC website 2009
  • Personal stories, information about pain management and CPC included in the curriculum of the Pain
  • Certificate Program of the University of Alberta 2010
  • Seven public pain information forums are scheduled in Ontario 2010
  • Three public fibromyalgia information forums are schedule in Ontario 2010
  • Spearheading an application for a Public Educational Special Group of the International Association of the Study of Pain

Member Support

  • Financial support to CPC member groups 2006 - present
  • Established a Small Educational Grant program for CPC member groups 2008
  • Quarterly e-newsletter production 2008 - present
  • Regular email updates to members about Canadian pain issues and CPC activities 2008 - present
  • Support for National Pain Awareness Week events held by member groups 2008 - present
  • Educational about pain and pain issues:

THE National Voice of People with Pain

  • Spokespersons about Canadian pain issues 2003 – present
  • Representing people with pain where policy and decisions are made with respect to pain care
  • Addressed Scheduling of Tramadol
    • Letter to Common Drug Review
    • Presented the person with pain perspective at a fact finding meeting on Tramadol convened by the Canadian Pain Society September 2007
    • Attended government meeting in Ottawa February 2008
  • Member, Canadian Pain Society Task Force on Service Delivery 2008 – present
  • Presentation at Fibromyalgia Preceptorship, Montreal 2008
  • Member Partners in Knowledge Translation committee, Institute of Musculoskeletal Health and Arthritis, Canadian Institutes of Health Research 2009 – present
  • Member Education working Group, Opioid Public Policy Project, College of Physicians and Surgeons of Ontario 2009 - 2010
  • Invited attendee at the McMaster Health Forum: Strengthening Chronic Pain Management Across Provincial and Territorial Health Systems In Canada December 2009
  • Member, Education Working Group, Opioid Public Policy Project, College of Physicians and Surgeons of Ontario 2009 - 2010
  • Steering Committee Member and facilitator National Patient Summit, March 2010

Advocacy

  • Created the Canadian Charter of Pain Patient Rights and Responsibilities 2003
  • Hosted National Pain Consumer Advisory Group Meeting, November 2009
    • Convened Working Group of the National Pain Consumer Advisory Group
    • Scheduled launch of advocacy plan on May 31 – June 1, 2010
  • Meetings with National and Provincial government and opposition officials 2007 – present
  • Advocating for the inclusion of the person with pain voice where policy and decisions are made concerning pain care 2002 - present

Surveys and Research Input

  • Reid Poll Canada - “Chronic pain prevalence and impact on quality of life” 2005
  • Member of various theme investigations of the “Community Alliances for Health Research and Knowledge Exchange on Pain”, Canadian Institutes of Health Grant 2008 – present
  • Consumer collaborator with the research study, “A Knowledge Synthesis to Improve Access to Care for Patients Living with Refractory Angina”, Dr. Michael McGillian, principal investigator 2008 - present
  • Consumer collaborator with the CIHR research study investigating “The biomedical and psychosocial factors that influence the development of acute and chronic post-surgical pain in children and adolescents”, Dr. Joel Katz, principal investigator 2009 – present

Funding Sources

  • DeGroote foundation grant 2005
  • Annual fundraising Gala 2004-2008
  • Unrestricted educational grants from various pharmaceutical companies
  • Created Pennies for Pain – National Fundraising and Awareness Campaign 2009
    • Entered Team CPC Pennies for Pain in Scotiabank Toronto Waterfront Marathon 2009 – present
  • CIHR Community Support Grant – Pain Resource Centre development 2009
  • Sustained funding for three years from the Canadian Pain Society 2010 - 2012

Collaboration

  • Co-founded Painexplained the national pain awareness campaign of the Canadian Pain Society, Canadian
  • Pain Coalition and Canadian Pain Foundation 2007
  • Pain information displays at malls across Canada with the Nursing Special Interest Group of the Canadian Pain Society 2008 - 2009
  • Video production “Moving from Patient to Person” with l’association québécoise de la douleur chronique 2008
  • Co-founder Pain Resource Centre with the Education Special Interest Group of the Canadian Pain Society 2009
  • National Pain Consumer Advisory Group with 10 Canadian Pain Coalition member groups to create a CPC Advocacy plan 2009 - 2010

Affiliations

  • Member of Canadian Pain Society Board of Directors 2005- present
  • Advisory Board member, Canadian Injured Workers Alliance 2007 – present
  • Advisor to Patient Ambassador Program 2008 – present
  • Member Partners in Knowledge Translation committee, Institute of Musculoskeletal Health and Arthritis,
  • Canadian Institutes of Health Research 2009 – present
  • Founding Member of National Patient Coalition 2010
  • Advisor to University of Alberta pain certificate program 2010

Updated April 22, 2010